SO MUCH HAS HAPPENED

So much has happened since the last time I have posted. The people who read my blog before were a very small group and I'm sure now those few have even stopped coming - including my husband. He was my number one fan but I doubt that he stops by anymore. He knows I have been feeling so lousy that I don't have the energy to post.

Well, so much has happened since I posted in April. I went to a new endocrinologist at the beginning of June. He discovered that I had low iron and put me on Slow Fe. It has taken a long time, however, slowly but surely it has seemed to help at least with some of my symptoms. I no longer huff and puff from just normal everyday activity. I would still say that I have some symptoms of low iron although I am sure that my lab numbers will show that I am well within range. I've decided that for me, I am going to not go by my lab numbers but just by how I am feeling. I am not worried about having too much iron because I am no where near the upper end of normal.

At the end of August I came down with Shingles! Talk about kicking someone when they are down! The worst of it was over in 4 weeks but I still have some slight itching and some numbness on my back where the rash was. For me the pain was not agonizing but really maddening. I had the pain first and then it was replaced by itching. For about a week or so I had both pain and itching and could not even slightly scratch it because it hurt so much even to rub my fingers over it. The doctor that diagnosed it recommended that I get a complete physical because shingles is usually seen in the elderly or people with compromised immune systems. I felt she was insinuating that I could have cancer when she recommended a mammogram. I figured it would be a good idea to get a physical and went to see an internist (not the same doctor). He listened to my long drawn out story of fatigue, migraines, under active thyroid, shingles, etc and seemed to be undecided whether I was crazy or I actually had something wrong with me. In the end he ran a bunch of tests just to be sure. I am still waiting for those results. If everything comes back negative he can jump onto the bandwagon that says I'm crazy.

During all of this I was still getting many migraines so I decided to keep my appointment that I had at the Jefferson Headache Center in Philadelphia. My visit there on September 30th went well. I had to take a personality test (370 questions) as well as speak to a psychologist to actually see if I am crazy! In reality, they are just seeing how stress may play a role in your headaches. They made sure I realized that they weren't saying that stress is causing my headaches but they were trying to see if the headaches may be exacerbated by stress. In the end the psychologist was actually impressed that I was so emotionally sound considering my not so lovely childhood. She gave me a card in case I want to try acupuncture and a book mark that says "Falun Dafa" on it. Its an ancient spiritual practice. I guess just using this book mark is supposed to relieve any stress I may experience. Hmmm.

My time with the nurse and neurologist was much more fruitful. I came away with a couple of new medications to take. He gave me something to replace the Imitrex I take when I actually get a migraine. Its Imitrex plus Aleve. More importantly, he gave me a prescription for an anti seizure medication that will hopefully prevent my migraines. Its called Lamictal and works to balance the neurotransmitters in the brain. Migraines have to do with the neurotransmitters firing out of control in the brain so it makes sense to try this medicine. He says that this particular medicine seems to be especially effective in migraines with aura. Since I always get the aura and sometimes I only get the aura without the headache, it should work well. Hopefully. If not there is always the book mark!

I try this medication for two and a half months and go back to see him. If it seems to be working, I will then stay on it for eight months. If it controls the headaches for that long I will then be weaned off from it. I can not take a full dose right away but will take a month to build up to the full dose. He said something about how this will help to avoid some sort of lethal rash you can get as a dangerous side effect...hee hee. Seriously, the rash thing is real but I really doubt I will have that problem. After all, I'm an optimist! So far I have been on the lowest dose for one week. My initial reaction is that it may already be helping a little bit. One week is too early to tell how much it may help me but I am hopeful for the first time in months.

I realize that this blog may not really explain all I've been through in the past two years regarding my health. I'm sure it doesn't portray how much I have lost of myself. I have become the sick person and I don't like that. I wish I was my old self but at this point I still feel far away from the old Elise. I know that in the past few months I have learned to ignore many of my problems and continue living my life. Because of this I'm not sure if the medicines are helping or if its just a case of mind over matter.

One of my hopes is that I can start to post a bit more here without always talking about my poor health. The best way to do that would be to start feeling more healthy! Well, if that is not possible then I would still like to find something more positive to write about. Regardless of audience size, I like to write about my everyday happenings.