Sunday, December 28, 2008

MY YEAR IN REVIEW


CHAPTER 1
I started the year on a new medication that was supposed to get rid of my migraines. I had started to get a lot the previous October. It seemed to be helping until February when I had a really bad spell. Let's just say that they call it "migraine disease" because its not just a headache. Lucky Tom, he was home recovering from his shoulder surgery during my worse week where I got a migraine 6 out of 7 days and I was in bed with a brain that was barely functioning...somewhat scary for me since my vision was not working properly. He took care of the kids, he managed to drive them to school and back. Anyway, Tom's surgery was to remove a calcium deposit that had built up and was limiting the movement in his arm so he couldn't raise it over his head. It was causing quite a bit of pain and had gotten to the point that it was interrupting his sleep. The surgeon who removed it did a very good job. So good in fact that he had told us that he hadn't gotten all of the deposit but when I asked him to show me the remainder on the xray at Tom's follow-up visit he just said "hmmm, good question I must have done better than I thought!" Tom has another less painful deposit in the other shoulder...someday.

So eventually when my brain cleared enough to think a little I decided to change doctors. I researched and decided on one that had excellent reviews in Philadelphia (also an office in NJ). I went to him at the beginning of June. He discovered I had an iron deficiency and I've been on iron ever since. Also changed my thyroid medication. Just to finish up about me, me, me....I went to the Jefferson Headache Center in Philadelphia at the end of September and am now on an anti seizure med (no, I don't get seizures but it helps with migraines). I also just started on Magnesium which is supposed to help. I can honestly say that I feel much better than in February but I am still very far from being 100%. My plan for the new year is to hope my health gets better and better and I can begin to get back into shape. Thomas and I walked 2.5 miles yesterday (using the new Christmas handheld GPS we got the family for Christmas) and I didn't get a migraine. Small steps. It'd be nice to lose the extra 15-20 lbs I've gained since becoming unhealthy, heck, I'd be nice to lose the extra 15 pounds I gained from being pregnant with Sarah (now 12 years old) but I'm going to focus more on feeling better. This all started in 2006 and this spring it will be three years that I've been struggling with this, enough already.


CHAPTER 2

So on to happy stuff. In January before I went down hill Erin and I were sitting around and we got an idea! ROAD TRIP! We both had always wanted to go to Dollywood, it must have been that special we had seen on TV. So I began to plan out a trip for June as soon as the kids were out of school. On the way down we went on the Cape May ferry. It was fun to have our van on a boat! The Chesapeake Bay bridge and tunnel was pretty neat too. We stopped first in New Port News, VA. We went to Busch Gardens as well as Colonial Williamsburg. It was fun but hot as heck and I was wondering how we would make it in Tennessee! It turned out it must have been a bit of a heat wave because the rest of the trip was fine.

Next on to Everett's house in Georgia to see all our southern redneck relatives. Just joking, they were all quite sophisticated. It turned out to be the perfect stop for us. At this point in the trip I think we all needed to stay in a real house for a couple of nights. The kids all felt like they were at a resort! Everett's master bath is as big as one of our bedrooms! Erin's getting ideas for her future home....she better stick with school and become a really great biologist! The first thing we did was to go to Everett's community pool. After driving all day it was nice to float around and relax. Back at Everett's house the kids decided to shoot some pool while taking "breaks" to exercise on all of Everett and Denise's equipment. No wonder Everett and Denise are looking so great AND no wonder my kids are so skinny! We all enjoyed the great variety of drinks that they had...sort of like those wet bars in the hotel rooms. The next day we went to the zoo with Everett, (unfortunately Denise had to work). Although Sarah had somewhat of a melt down I had a really great time! Lets just say, when Sarah has had too much excitement the beast from within surfaces but we still love her! Its a shame since she is the one who likes animals the most. The zoo is where I took our Christmas picture in that really neat stand of bamboo.

We had wanted to go to the Japanese restaurant while we were there because we knew that the kids would love it. It met all our expectations and more. I wasn't sure if Erin would like the food because she doesn't really like Chinese food. I've realized that Japanese food is much less greasy and the flavoring is not so overpowering as Chinese food. As a weird coincidence, it was me and Tom's anniversary so we were treated to some sort of umbrella ceremony. The restaurant sent us home with a picture of us and the family and a special set of chopsticks. Everett and Denise treated us to dinner...thanks again guys.

We had a great time at Everetts but on to Tennessee! We made a short trek to Lookout Mountain. We rode the very steep and scary inclined railroad and the entire time discussed what would happen if the cable broke. We did manage some nervous glances at the view. We spent more time looking once we reached the top. We also went to Rock City and walked through and were quite impressed with all the interesting places. I've always enjoyed walking and hiking and it was just enough to be fun but not poop me out. Sarah wouldn't go on the rope bridge and Erin was a little weak in the knees as she crossed but Thomas wanted to bounce up and down. Some yelling ensued and he calmed down. Ha ha. I think my favorite attraction was the Tennessee Aquarium. It has two buildings one for ocean fish and one for fresh water fish. It had some really unusual exhibits. For example the jelly fish. You were in a darkened area with the jelly fish tanks lit up to make them look even neater. The IMAX theater has stadium seating and had a really neat show. Sarah was out of her funk and had a great time.

On to Dollywood. I think that by the time we got there we were all vacationed out. I think we would have enjoyed ourselves more if it had been at the beginning of our trip. I had booked the best hotel room here and it had a kitchen, balcony and a lot of room. They had an indoor and outdoor pool, a small lazy river, two hot tubs and a kiddy pool. It was situated by a small brook were ducks hung out and small rabbits were frolicking. The free breakfast was the best. Needless to say we mostly wanted to spend our time here relaxing. Fortunately we had allowed for one day of doing nothing. We went to Dixie Stampede one night (a dinner show like Medieval Times).

Our final stop was Monticello in Virginia and then finally home.


CHAPTER 3

We were pretty low key the rest of the summer just going to the beach house and spending time there with Maureen (Tom's sister) and her family when she rented her own bungalow. The kids start school the last Monday of August and we needed to get sports physicals for them to run cross country. Erin started high school (9th grade) with some ambivalence but it has turned out that she is quite happy. She is still playing violin and is doing great. She had problems with her legs so spent much of the cross country season not running. Sarah started middle school (6th grade) with ME having some ambivalence but she is doing great. She's quite smart and if she could just stop worrying then she would realize this! She's still playing viola and is on the math team - quite an accomplishment for a 6th grader. Thomas is in 10th grade....he's just happy being with his geeky friends who like calculators and computer programming as much as him!


CONCLUSION

I finished up 2008 in the mad dash to buy all the Christmas presents and make the kids the traditional Christmas Eve pajamas. Erin has a giraffe pattern, her favorite animal. Sarah wanted cows and she got them and Thomas looks like he has animal tracks all over him... its a nice blue though.

I'm hoping for a great 2009! I wish you all peace, happiness and good health!

Monday, December 01, 2008

MIGRAINE NEWS

On September 30th I went on an anti seizure medication to try and control my migraines. I did not have any migraines in the month of October. In November I had three. Every time I get another migraine I get a depressed sort of feeling. I had a lot of hope for this new medicine. The first two migraines came close together and I thought maybe it was a fluke. Then I got that third one.

Even with these migraines I feel that there are a lot of good things about this medicine. As soon as I went on it I started to feel different. My brain seemed to be working better. The only time my brain hasn't been working better was during the days following my three migraines. A lot of my other weird symptoms have gotten quite a bit better. Again, they seemed to only flare up during my migraine episodes.

I go back to see the neurologist in the middle of December. I want to be migraine free but at this point I am not sure if that is possible. I'm also a little scared that if I switch medications my brain will stop being okay. I can't explain to you how frustrating it was to lose that mental function. Its as if I went to from being a relatively smart person to a relatively stupid person. I have never been able to explain this fully to anyone. The only people who truly understand are my husband and my three kids. They witnessed it first hand. They understand what I mean when I say I was out of it. I tried to explain this to the neurologist when I saw him but I don't think he got it. I will try to explain it to him again because I think it is so important, since this medicine has made such a difference.

I think I've gotten pretty much all of my brain back - except for those migraine moments or when I am tired. Now that I've gotten it back I realize how much I was missing. I've recently started reading a Stephen King novel and realized that I hadn't been reading adult books anymore. Last year I started to read the same books that my 8th grade daughter was reading. Although I could follow the adult books, it was just too exhausting and it sucked all the fun out of it. Another thing that I've started doing again is learning to play the keyboard. Last year I had started to teach myself how to play. I have always wanted to learn to play piano and the keyboard is the next best thing. I don't know quite when I stopped but things like that had just fallen by the wayside. I just didn't have the mental ability or energy to do them anymore. I am still lacking in the energy department but have enough to do nonphysical things like playing the keyboard. The bit of physical energy that has returned is generally used up on housework. I'm okay with that, its nice to have my house somewhat organized.

If I look at things in terms of the last 10 months I see a big difference in my health. I think that I have been slowly getting better with occasional setbacks. I am leery of saying that I am truly getting better because it seems that the bad spells that I have come out of nowhere. I can't rule out the possibility that tomorrow I will suddenly have a terrible month that leaves me in bed for days at a time with my brain spinning with chaos. Sounds oh so dramatic but that is what happened to me in February/March. I try to stay positive but its been difficult. Its awful living this way, not knowing when these episodes will strike. Its awful wondering if this is what my life will always be like. Is this something that I will have to accept as the norm for me?

I usually try to end my posts with a sentence that wraps everything up into some sort of conclusion. It seems that this time I can't really do that. My migraine news seems sort of open ended so this is how I will leave it.